Dear KAT6 Community,
On behalf of the KAT6 Foundation Board of Directors, I am pleased to announce the appointment of Aimee Reitzen as the KAT6 Foundation's new Executive Director.
Many of you already know Aimee through her years of service to our community. As a founding Board member and longtime volunteer, she has helped shape the Foundation from its earliest days. Throughout her nearly decade-long involvement, Aimee has led many of the Foundation's communications, awareness, and family support efforts, including developing the KAT6A & KAT6B Caregiver Handbook, launching the Foundation's website, spearheading the creation of the Empowered Grants Program, and helping grow KATwalk from a small grassroots fundraiser into the Foundation's signature annual event. For many families, she has also been one of the first people they connected with after receiving a diagnosis, offering guidance, resources, and a sense of community during an often overwhelming time.
As the parent of a child with KAT6A syndrome, Aimee brings a unique combination of personal experience, professional expertise, and deep commitment to our mission. For nearly a decade, she has worked tirelessly to support families, strengthen connections across our global community, and help advance research and educational initiatives that benefit individuals with KAT6A and KAT6B syndromes.
Since our founding in 2017, the KAT6 Foundation has grown tremendously. Together, we have funded important research, established the Patient Registry and iPSC Biobank, expanded educational resources, launched family support initiatives, supported the development of the KAT6 Clinic at Boston Children's Hospital, and built a truly global community. Aimee has been an important part of that journey, and we are excited to see her step into this leadership role as we continue building on that progress.
Please join me in congratulating Aimee on her new role. I look forward to working alongside her as we continue advancing our mission to improve the lives of individuals and families affected by KAT6A and KAT6B syndromes.
Thank you for your continued support of the KAT6 Foundation and the incredible community we have built together.
Warm regards,
Jordan Muller
Chairperson, Board of Directors
KAT6 Foundation

