December 18, 2018

Holidays with Holden

Christmas has always been a big deal in our house. All of us, kids and parents, enjoy the feeling of Christmas. We especially love the glittery, sparkly decorations that come along with it. We always have lots of garland, lights, and decorations in our house—you know—all the sparkly fun things kids love!

When you have a special needs child, those things can be either wonderful or horrific. For Holden, who is three and a half years old, it depends on his mood of the day. This year, when we pulled the Christmas tree out of the bag for the first time, we thought poor Holden was going to have a heart attack! A big, green, prickly, scary thing in the house! Holden must have thought it was a big green monster. But we got it set up with all the decorations and lights and he began to be curious about it. Pretty soon he was pulling ornaments off the tree. As the mom of three boys, I will be the first to tell you that the last thing you want is a child pulling ornaments and decorations off your beautiful tree. But when Holden began to do that instead of showing fear or aggravation I was happy! We were all relieved he was no longer scared of the tree and was enjoying having it in the house. We let him explore and figure out that the Christmas tree was harmless and was not going to hurt him.

Like many kids with special needs, Holden does not do well with change, and he has become much more observant of his surroundings over the last year. So many different things can upset him and cause him to be very unhappy. Now that it is the Christmas season, our house is not looking the same as it always does. The first few days with the decorations, he was really confused and upset about the changes. With a lot of patience and some time, Holden has become used to all the new things in the house and is actually starting to enjoy some of them.

Since we never know what simple thing might be the one thing that he just doesn’t agree with, we were worried about what his reaction to Sant Claus would be. Surprisingly, Holden was perfectly fine seeing Santa and sitting on his lap! His older brothers were sitting next to him, so that made him feel safe and secure.

We hope everyone has a blessed Christmas season.

Love,

The Green Family

rare-should-never-mean-invisible
questo-e-samuele
fyonas-journey-with-kat6-a-german-familys-story
kat6-foundation-leadership-update
the-story-behind-kat6-and-me
iwanttogettoknowyou
kat6-clinic-opens-at-boston-childrens-hospital
empowering-families-through-the-empowered-grant
2025-kat6-foundation-funded-research-projects
seeking-participants-for-new-kat6a-research-study
a-story-of-strength-resilience-and-gratitude
rare-as-one-network-cycle-1-impact-report
attention-researchers
kat6-foundation-selected-as-a-2024-rareis-global-advocate-grant-recipient
kat6-mother-advocates-for-inclusive-playground
kat6-on-screen
the-kat6-foundation-establishes-committee-to-study-mortality
the-first-kat6-foundation-funded-research-project-gets-published
bowel-obstructions-in-the-kat6-population
recap-of-kat6a-kat6b-virtual-symposium-gi-health-and-beyond
a-long-awaited-answer
for-however-long-became-our-forever
we-urge-doctors-to-dig-deeper-when-children-are-struggling-to-gain-weight
join-our-events-contact-list
kat6a-kat6b-virtual-symposium-recap
czis-rare-as-one-project-awards-kat6a-foundation-150000
reflections-of-a-letter-from-the-past-by-david-woodbury
lilly-meets-a-golf-legend-jack-nicklaus
bruno
carolines-autobiography
18-years-and-31-days
life-as-a-father-of-a-special-needs-child
holidays-with-holden
jack-makes-a-splash
the-story-of-ruzgar
how-to-teach-your-non-verbal-child-what-to-do-if-lost
victoria-peaceful-musical-and-always-cheerful
1-2-3-go-camo
warrens-story
morning-at-my-house
ruby-on-my-mind
dr-arboledas-kat6a-research
eleanor-kat6a-when-dreams-learn-to-fly
beloved-pol-from-spain
kat6a-clinic-february-3-2018
meet-chase
both-sides-of-the-bed
peters-personal-blog
life-on-the-other-side
sweet-savannah-second-diagnosed
live-love-and-laugh-with-will
franki-the-fighter
chloes-history
sweet-holden
joyful-madison
dear-grandson
a-younger-brothers-perspective
peters-experience-with-a-mitochondrial-cocktail
jacks-story
izzys-kat6a-journey
ma-guerriere-chloe
lexperience-dune-mere-francaise
kristens-story